Skip to main content

Table 6 Patient and caregivers-reported outcomes before and after the intervention exposure

From: Feasibility, acceptability, and outcome responsiveness of the SYMPERHEART intervention to support symptom perception in persons with heart failure and their informal caregivers: a feasibility quasi-experimental study

 

Persons with HF (n = 17–18)

Informal caregivers (n = 6–7)

Mean ± SD

Mean ± SD

Self-care/contribution to

 Self-care maintenance

  Baseline

62.5 ± 12.2

60.0 ± 32.4

  Post-intervention (30 days)

62.1 ± 18.1

63.5 ± 25.4

  Follow-up (90 days)

58.2 ± 13.8

61.5 ± 18.1

 Symptom perception

  Baseline

52.0 ± 17.7

58.9 ± 24.9

  Post-intervention (30 days)

55.5 ± 17.0

69.1 ± 22.6

  Follow-up (90 days)

59.8 ± 16.8

63.5 ± 18.8

 Self-care management

  Baseline

38.6 ± 15.9

49.3 ± 25.6

  Post-intervention (30 days)

39.2 ± 15.4

52.5 ± 20.9

  Follow-up (90 days)

41.1 ± 19.9

51.5 ± 25.6

Health status, overall

 

/

 Baseline

70.2 ± 15.6

 

 Post-intervention (30 days)

68.8 ± 14.1

 

 Follow-up (90 days)

70.1 ± 21.4

 

Physical limitation

 

/

 Baseline

66.6 ± 17.4

 

 Post-intervention (30 days)

64.3 ± 19.9

 

 Follow-up (90 days)

72.7 ± 28.4

 

Symptom frequency

 

/

 Baseline

77.4 ± 18.0

 

 Post-intervention (30 days)

75.6 ± 14.3

 

 Follow-up (90 days)

78.4 ± 22.5

 

Quality of life

 

/

 Baseline

65.9 ± 20.0

 

 Post-intervention (30 days)

63.8 ± 20.5

 

 Follow-up (90 days)

65.4 ± 20.5

 

Social limitation

 

/

 Baseline

69.7 ± 25.7

 

 Post-intervention (30 days)

70.0 ± 26.8

 

 Follow-up (90 days)

59.8 ± 31.6

 

Symptom burden

 

/

 Dyspnea

  Baseline

0.58 ± 0.54

 

  Post-intervention (30 days)

0.57 ± 0.71

 

  Follow-up (90 days)

0.79 ± 1.08

 

 Chest discomfort

 

/

  Baseline

0.86 ± 1.09

 

  Post-intervention (30 days)

0.61 ± 0.79

 

  Follow-up (90 days)

0.94 ± 1.19

 

 Early subtle

 

/

  Baseline

1.31 ± 0.74

 

  Post-intervention (30 days)

1.17 ± 0.64

 

  Follow-up (90 days)

1.16 ± 0.81

 

 Edema

 

/

  Baseline

0.94 ± 0.96

 

  Post-intervention (30 days)

0.81 ± 0.90

 

  Follow-up (90 days)

1.11 ± 1.02

 

Caregiver burden

/

 

 Baseline

 

18.5 ± 10.0

 Post-intervention (30 days)

 

20.5 ± 15.1

 Follow-up (90 days)

 

20.1 ± 6.2

  1. Note. Higher scores indicate better self-care, health status, and higher symptom burden and caregiver burden. The cutoff indicating adequate self-care on the SCHFI and CC-SCHFI is ≥ 70 for each subscale. Fair to good health status is described by KCCQ scores from 50 to 74, and scores ≥ 75 indicate good to excellent health. Scores of the HFSPS are 0 = not had this symptom, 1 = not at all bothersome, 5 = extremely bothersome. The cut off indicating caregiver burden on the Zarit Burden Interview is ≥ 17 considered as high burden