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Table 9 BCPPA goal attainment and frequency of linked conversation behaviours observed via analysis of pre- and post-intervention video recorded conversations

From: Results from a randomised controlled pilot study of the Better Conversations with Primary Progressive Aphasia (BCPPA) communication partner training program for people with PPA and their communication partners

Dyad

Goals agreed by PwPPA, CP and the local collaborator (NB: Each goal has been labelled to show who the goal belongs to)

Achievement

Baseline score

Attainment score

Change score

Corresponding behaviour no. and description (see rating guidance for list of behaviours)

Pre-intervention frequency

Post- intervention frequency

2.01

To elaborate more (PwPPA)

A + 

35.78

64.22a

28.44

1 (F)

8.33

6

To wait or avoid finishing PwPPA’s sentences (CP)

A + 

2 (B)

0

0

To ask more questions (PwPPA)

A + 

3 (F)

4

7a

To ask more open questions (CP)

A + 

4 (F)

0.7

0.7

3.01

To use gestures when encountering word finding difficulties (PwPPA)

A

35.81

58.9

23.09

19 (F)

0.33

3a

To ask less test questions (CP)

A + 

5 (B)

1.7

0.7a

To give additional information around a person’s identity when unable to generate name (PwPPA)

A

6 (F)

0

0.33a

To waiting before offering prompts to help (CP)

A + 

7 (F)

0.3

3a

4.02

To use prompt card when needed to help facilitate conversations (PwPPA)

A + 

38.76

63.3a

24.54

8 (F)

0

0

To let PwPPA lead conversations (CP)

A +  + 

16 (F)

0

0

3.03

To pause when PwPPA gets stuck on a word and give a bit more time (CP)

A + 

36.78

67.6a

30.82

7 (F)

3

0

To use eye gaze to point, when stuck on a word, to indicate word/topic (PwPPA)

A + 

24 (F)

0.33

0

To use hands for gesture/mime to support talking (to prompt self & indicate to others) (PwPPA)

A +  + 

20 (F)

2.33

12a

1.01

To choose the topic (PwPPA)

A + 

35.38

63.2a

27.82

9 (F)

3.67

3.67

To describe or use gesture if I can’t think of the word (PwPPA)

A

11 (F)

19 (F)

0

0

0

0

To ask single questions rather than either or questions (CP)

A + 

12 (B)

14 (F)

10.3

0

8.3a

1a

To use shorter sentences (CP)

A + 

15 (F)

14.7

10.3

To ask questions to prompt PwPPA to choose a topic (CP)

A + 

16 (F)

7.7

10a

4.04

To use a key word then comment based on this, to try and expand responses (to avoid always saying yes / no or agreeing) (PwPPA)

A

37.64

43.1

5.46

17 (F)

18.67

16

To use a gesture / signal when it’s the end of turn – difficult to know if finished OR if needing time to generate next response (PwPPA)

A + 

18 (F)

0.33

1a

To prompt / use open ended questions to encourage expanded responses (CP)

NA

4 (F)

14 (B)

6.3

0

7a

0.3a

8.01

To use non-verbal communication / gesture to indicate understanding (PwPPA)

A + 

36.31

59.1

22.79

20 (F)

2.33

0.33

To feel less frustrated in conversations (PwPPA and CP)

A

To have strategies for managing negotiations in conversation (PwPPA and CP)

A + 

6.01

To use more meaningful gesture in conversation (PwPPA)

A + 

36.31

63.7a

27.39

20 (F)

22 (F)

12

0

17.67a

0.33a

To use more writing and drawing in conversation (PwPPA)

A + 

17 (F)

11.67

10.67

To use more key words and automatic phrases in conversation (PwPPA)

A + 

25 (F)

3

3.33a

6.03

To use intonation more to indicate agreement/disagreement, opinion, feelings and mood (PwPPA)

A + 

38.2

49.02

10.82

26 (F)

0

0.33a

To use eye gaze to point to support shared attention (PwPPA)

A

27 (F)

0.67

3.33a

To use props/objects to support conversations (CP)

A

21 (F)

2.7

6.7a

  1. CP communication partner, PwPPA Person with Primary Progressive Aphasia, NA not achieved, A achieved as expected, A + achieved more than expected, A +  + achieved much more than expected, amore than 1 SD from the published t-score mean (Turner-Stokes, [41]), F facilitator behaviour that enhances the progressivity of conversation, B barrier behaviour that prevents progressivity, resulting in temporary breakdown of conversation