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Table 8 Outcome measures completed with the PwPPA and the CP pre-intervention, post-intervention and change scores for the BCPPA intervention group and no treatment control group

From: Results from a randomised controlled pilot study of the Better Conversations with Primary Progressive Aphasia (BCPPA) communication partner training program for people with PPA and their communication partners

Rater

Measure

BCPPA (n = 9)

No treatment control group (n = 8 for DEMQOL & CCRSA, n = 9 for all other measures

Pre-intervention

Post-intervention

Change score

Pre-intervention

Post-intervention

Change score

PwPPA

Aphasia Impact Questionnaire 21 (AIQ-21 [42])

19.78

16.56

 − 3.33 (SD: 6.8)

11.22

14

2.78 (SD: 7.48)

Dementia Quality of Life Measure (DEMQOL [43])

87.89

92.38

3.11 (SD: 9.65)

91.38

97.88

6.5 (SD: 11.21)

Communication Confidence Rating Scale for Aphasia (CCRSA [44])

59.67

63.11

3.44 (SD: 13.4)

63.25

76

12.75 (SD: 11.12)

CP

Perceived Stress Scale (PSS [45])

13.66

12.78

 − 0.89 (SD:2.37)

14.55

11.22

 − 3.33 (SD:4.5)

Zarit Burden Scale [46]

27.33

22.56

 − 4.78 (SD: 7.66)

20.22

15

 − 5.22 (SD:7.73)

  1. PwPPA person with Primary Progressive Aphasia, CP Communication Partner, BCPPA Better Conversations with Primary Progressive Aphasia, SD standard deviation