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Table 3 Outcome measures collected pre- and post-intervention for the BCPPA pilot study

From: Results from a randomised controlled pilot study of the Better Conversations with Primary Progressive Aphasia (BCPPA) communication partner training program for people with PPA and their communication partners

Respondent

Measure

PwPPA

Aphasia Impact Questionnaire 21 (AIQ-21 [42])

Dementia Quality of Life Measure (DEMQOL [43])

Communication Confidence Rating Scale for Aphasia (CCRSA [44])

CP

Perceived Stress Scale (PSS [45])

Zarit Burden Scale [46]

Dyad

Four 10-min video recorded everyday conversations

  1. PwPPW Person with primary progressive aphasia, CP Communication Partner