Table 2 Summary of baseline data collection for the feasibility randomised controlled trial
Demographics | Age, sex, ethnicity, religion, marital status + / − children, employment status, education level, housing tenure, EIMD 2019 score, distances lived from kidney hospital and transplanting hospital, car ownership, alcohol consumption, smoking history |
|---|---|
Clinical | Primary renal disease, date of current transplant listing, comorbidities, current stage of kidney disease (pre-emptive, haemodialysis, peritoneal dialysis), body mass index (BMI) |
Patient reported | Renal and transplant knowledge (R3K-T [41]), social support (ISEL-12 [42, 43]), patient activation (PAM13 [26, 44]), health literacy (SILS [45, 46]), transplant preference, transplant beliefs [47], experience talking to family and friends about kidney disease and living donation (binary response questions), quality of life (EQ-5D-5L [48]) |
Laboratory | Blood group, tissue type at HLA-A, B and DR, matchability (levels 1–10), % calculated reaction frequency |
Family and social network | Draw sociogram/social network diagram — containing information on all close relationships with relatives and friends and the estimated age, sex and health of these social contacts |