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Table 2 Secondary outcomes

From: A family-tailored early motor intervention (EMI-Heart) for infants with complex congenital heart disease: study protocol for a feasibility RCT

 

Timepoints

T0

T1

T2

Motor assessments

 Infant Motor Profile [45]

x

x

x

 Alberta Infant Motor Scale [29]

x

x

x

 General Movement Assessment [47]

x

  

 Hammersmith Infant Neurological Examination [49]

x

 

x

 Motor domains of the Bayley Scales of Infant and Toddler Development III [46]

  

x

Parental questionnaires assessing family well-being

 Infants’ quality of life

Pediatric Quality of Life Inventory [53]

x

x

x

 Parents’ quality of life

Short Form Survey-SF 36 [54, 55]

x

x

x

 Parental mental health

Brief Symptom Inventory 18 [56]

x

x

x

 Parental stress experience

Parental Stress Index [57]

x

x

x

 Infants’ protection

Parental Overprotection Measure [58]

x

x

x

 Parental empowerment

Family Empowerment Scale [59]

x

x

x