Table 1 Content of questionnaires completed by care recipients and carers
Completed by: | |||
|---|---|---|---|
Measure | Reference | Care recipient | Carer |
Demographics | Age, gender, type of diagnosis, caregiving timing, and relief | ✓ | ✓ |
Sleep timing and quality | Pittsburgh Sleep Quality Index (PSQI) range = 0–21, > 5 = “disturbed sleep”] [18] | ✓ | ✓ |
Dementia-related sleep disturbance | Sleep Disorders Inventory (SDI) range = 0–12/”severely disturbed sleep” [19] | ✓ | |
Health | Self-Administered Comorbidity Questionnaire (SCQ [20]) and medication list | ✓ | ✓ |
Cognitive impairment | Mini-Mental State Examination (MMSE) range = 30–0, > 23 = “no impairment,” 19–23 = “mild cognitive impairment,” 10–18 = “moderate cognitive impairment,” and ≤ 9 = “severe cognitive impairment” [22] | ✓ | |
Dementia-related symptoms | Revised Memory and Behaviour Problems Checklist (RMBPC) global score (0–96) plus sub-scores for memory (range = 0–28), depression (range = 0–36), and disruptive behaviours (range 0–32) with higher scores indicating increased frequency of behaviours and negative carer affect [23] | ✓ | |
Quality of life of recipient | Quality of Life in Alzheimer’s Disease: Patient and Caregiver Report (QOL-AD) range = 52 (excellent)—13 (poor) [24] | ✓ | ✓ |
Mental health | Hospital Anxiety and Depression Scale (HAD), range 0–21, 0–7 = “normal,” 8–10 = “borderline,” 11–21 = heightened risk [21] | ✓ | |
Impact of caregiving | Carers of Older People in Europe index (COPE) range for positive impact of caring items = 15–0(< 12 = reduced coping). Range for negative impact of caring items = 0–18 (> 12 = reduced coping) [25] | ✓ | |