Table 2 Questionnaires used as outcome parameters
From: A feasibility study on two tailored interventions to improve adherence in adults with haemophilia
| Â | Outcome | Questionnaire | Specifications | Minimal important difference |
|---|---|---|---|---|
Used in both interventions | Adherence | VERITAS-Pro [26] | - 6 domains (Time, Dose, Plan, Remember, Skip and Communicate) - 24 multiple choice questions - Cumulative normalized total score ranging 0–100 | Not official defined. We considered an increase of 5 point clinical relevant |
Quality of life | SF-36 [27] | - 8 domains (physical functioning (PH); role-physical (RH), Bodily Pain (BP), General health (GH), Vitally (V), Social functioning (SF), Role-emotional (RE) and mental health (MH). - 36 multiple choice questions | Increase by 5 points [30] | |
Face-to-face training | Illness perception | BIPQ [28] | - Only a total score, no domains - 8 multiple choice questions - Cumulative score ranging from 0 to 80 | Not official defined. We considered an increase of 5-point clinical relevant |