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Table 1 Validated measures collected from patients at baseline and during post-discharge follow-ups

From: Improving patient experience and safety at transitions of care through the Your Care Needs You (YCNY) intervention: a study protocol for a cluster randomised controlled feasibility trial

Measure

Description

Collected when

Functional Co-morbidity Index (FCI) [25]

18 self-reported comorbid conditions with a score of 0 to 18 with each item scoring 1. A higher FCI score indicates greater comorbidity and is associated with impairment in physical function 1 year later.

Baseline

Barthel Index (BI) [23]

10 items measuring a person’s daily functioning, particularly the activities of daily living and mobility. Total possible scores range from 0 to 20, with lower scores indicating increased disability.

Baseline

EuroQol 5-Dimension Health Questionnaire (5 levels) (EQ5D-5 L) & Proxy EQ5D-5 L [24]

The EQ5D-5 L and Proxy EQ5D-5 L measures quality of life comprising five dimensions: mobility, self-care, usual activities, pain/discomfort, and anxiety/depression. Each dimension is scored on a five-point ordinal scale: no problems, slight problems, moderate problems, severe problems, unable. Scores can be used to calculate quality-adjusted life-years (QALYs).

Baseline and post-discharge follow-ups

Partners At Care Transitions Measure (PACT-M) [26]

The PACT-M assesses patient perceptions of the quality and safety of transitions from hospital to home, relevant to a UK population. In total, eight items are scored on a five-point Likert scale: strongly disagree, disagree, neither agree nor disagree, agree, strongly agree with an additional option of ‘not applicable’. The PACT-M also measures the incidence (yes or no) of seven adverse events following discharge from the hospital.

Post-discharge follow-ups

Care Transitions Measure 3 items (CTM-3) [27]

The CTM-3 (derived from the 15-item CTM) is a patient-centred measure of the quality of care transitions. Three items are scored on a five-point Likert scale ranging from strongly agree to strongly disagree.

Post-discharge follow-ups

Client Service Receipt Inventory (CSRI) [28]

The CSRI will be used to assess patients’ use of health-related resources. Questions have been adapted to assess the health resources that are pertinent to care transitions from hospital to home for older people.

Post-discharge follow-ups