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Table 2 Outcome measures collected at baseline, post-intervention, and 1 month follow-up

From: A web-based carepartner-integrated rehabilitation program for persons with stroke: study protocol for a pilot randomized controlled trial

Variable

Measures

Description

Reliability/validity

Primary outcomes

 CP depression symptoms

CES-D

20-item, Likert-type scale

Established validity, internal consistency, reliability [25, 26]

 CP family conflict

Family Caregiver Conflict Scale (FCCS) about Stroke Recovery

15-item, Likert-type scale higher scores/higher conflict

Established content/construct validity in stroke CP; reliability Cronbach’s alpha of .93 [27]

 SS upper extremity function

Wolf Motor Function Test (WMFT)

Motor Activity Log (MAL)

15-item speed measures;2-item strength; low score/faster speed

30-item questionnaire, Likert-type scale; high score/high quality UE use

Inter-rater reliability r = .97; valid in the stroke population [28]

Process variables

 CP/SS autonomy support environment

Family Care Climate Questionnaire

FCCQ-CP/FCCQ-SS

14-item, Likert-type scale. Higher scores/higher autonomy support perception

Internal consistency > .70; Construct validity supported- higher FCCQ-SS scores related to SS lower perception of criticism, higher family emotional involvement-higher satisfaction with family support (p ≤ .05) [29]

 CP fatigue

Piper Fatigue Scale

22-item scale, Likert-type scale. Higher score/higher fatigue

Strong internal consistency reliability Cronbach’s alpha of .97 and construct validity in stroke carepartners [30, 31]

 CP strain

Carer Strain Index -CSI (modified)

13-item questionnaire, binary yes/no; higher score/higher strain

Good reproducibility and validity in stroke carepartners, Cronbach’s alpha of .83 [32,33,34,35]

 CP well-being related to caregiving

Bakas Caregiving Outcome Scale (BCOS)

15-items; 7-point scale; higher scores/more positive caregiving outcomes

Satisfactory reliability and validity in stroke carepartner, Cronbach’s alpha of .90 [36]

 CP family functioning

Family Assessment Device (FAD)

27-items; Likert-type scale. Higher score/unhealthy functioning

Concurrent and predictive validity, internal consistency reliability, sensitivity and specificity demonstrated various samples [37] and used in stroke studies [38, 39]

 CP perspective of SS memory and problem behaviors

Memory & Behavior Problems Checklist (MBPC)

19-item scale; Likert-type scale. Higher score/higher frequency

Reliability and validity established in dementia population, and internal consistency reliability coefficient = .73 in stroke [40, 41]

 SS quality of life

Stroke Impact Scale (SIS)

59-items, 8 domains function

Test-retest reliability ICC = 0.70 to 0.92; Internal consistency alpha coefficient of 0.83–0.90 [42]

 SS UE self-efficacy

Confidence in Hand and Movement Scale (CAHM)

20-item (scale 0–100)UE confidence for functional tasks; high scores/high confidence

Reliable and valid with moderate relationship with WMFT 3–9 months post-stroke [43]

 SS upper extremity function

Upper Extremity Fugl-Meyer

33-item, 3-point ordinal scale; higher score/higher function

Established reliability and validity in stroke popul. [44, 45]

CARE-CITE usability

 CP experience in CARE-CITE

Exit Interview

Three sections assessing confidence in care, value of participation and aspects of CARE-CITe

Interview guide will be reviewed by content and qualitative experts prior to use.

 CP satisfaction with CARE-CITE

Feedback forms at end of CARE-CITE modules

5-items, Likert-type scale; higher scores/higher satisfaction

Interview guide will be reviewed by content and qualitative experts prior to use.

 CP confidence in using technology

Modified Computer Self Efficacy Scale (MCSES)

10-item, Likert-type scale. Higher scores/higher self-efficacy

Established reliability and validity [46].

 CP experience using CARE-CITE

Post-Study System Usability Questionnaire (PSSUQ)

19-item, Likert-type scale. Lower scores/greater usability of instrument

Established reliability and validity [47]