Table 8 Data completeness
Scoring | Follow-up time point | Control (N = 4) n (col %) | Intervention (N = 8) n (col %) | Overall (N = 12) n (col %) |
|---|---|---|---|---|
NSAA score | Consent | 4 (100) | 8 (100) | 12 (100) |
Baseline | 4 (100) | 8 (100) | 12 (100) | |
6Â months | 2 (100) | 8 (100) | 10 (100) | |
FVC absolute | Consent | 4 (100) | 7 (88) | 11 (92) |
Baseline | 2 (50) | 5 (63) | 7 (58) | |
6Â months | 0 (0) | 5 (63) | 5 (56) | |
FVC % predicted for height | Consent | 2 (50) | 4 (50) | 6 (50) |
Baseline | 2 (50) | 5 (63) | 7 (58) | |
6Â months | 0 (0) | 5 (63) | 5 (56) | |
6-min total distance | Consent | 0 (0) | 0 (0) | 0 (0) |
Baseline | 4 (100) | 8 (100) | 12 (100) | |
6Â months | 1 (100) | 8 (100) | 9 (100) | |
CHU utility value | Consent | 0 (0) | 0 (0) | 0 (0) |
Baseline | 3 (75) | 8 (100) | 11 (92) | |
6Â months | 1 (100) | 8 (100) | 9 (100) | |
CarerQOL score | Consent | 0 (0) | 0 (0) | 0 (0) |
Baseline | 3 (75) | 7 (88) | 10 (83) | |
6Â months | 1 (100) | 7 (88) | 8 (89) | |
CarerQOL happy VAS | Consent | 0 (0) | 0 (0) | 0 (0) |
Baseline | 3 (75) | 8 (100) | 11 (92) | |
6Â months | 1 (100) | 8 (100) | 9 (100) | |
ACTIVLIM patient score | Consent | 0 (0) | 0 (0) | 0 (0) |
Baseline | 3 (75) | 8 (100) | 11 (92) | |
6Â months | 1 (100) | 8 (100) | 9 (100) | |
ACTIVLIM patient measure | Consent | 0 (0) | 0 (0) | 0 (0) |
Baseline | 3 (75) | 8 (100) | 11 (92) | |
6Â months | 1 (100) | 8 (100) | 9 (100) |