Questionnaire | Measures | Caregiver self-report | Child/teen self-report | Parent-proxy report | |||
---|---|---|---|---|---|---|---|
 |  | Baseline | 12-month F/U | Baseline | 12-month F/U | Baseline | 12-month F/U |
aPAT | Psychosocial risk | X | X | Â | Â | Â | Â |
aPROMIS-anxiety | Anxiety | X | X | X | X | Â | Â |
b(PI-ED) | Anxiety and depression | Â | Â | X | X | Â | Â |
aPROMIS-Depression | Depression | X | X | X | X | Â | Â |
bPedsQL-generic | Quality of life (QOL) of child/teen | Â | Â | X | X | X | X |
bPedsQL-cancer | QOL of child/teen (related to cancer) | Â | Â | X | X | X | X |
aDT (intervention dyads also complete DT on a monthly basis) | Distress | X | X | X | X | Â | Â |
bPROMIS-fatigue | Fatigue | X | X | X | X | Â | Â |
bPROMIS-Emotional Support | Emotional support | X | X | X | X | Â | Â |
bPROMIS-Peer Relationships | Peer relationship support | Â | Â | X | X | Â | Â |
bPittsburg Sleep Quality Index | Sleep quality | X | X | X | X | Â | Â |
bResponse to Stress Questionnaire (RSQ-PC) | Coping with cancer diagnosis | X | X | X | X | Â | Â |
bImpact of Events Scale (IES-R) | Post-traumatic stress | X | X | X | X | Â | Â |
bFinancial impact | Financial impact of diagnosis and treatment | X | X | Â | Â | Â | Â |
cSatisfaction questionnaire (intervention dyads only) | Satisfaction with intervention and study experience overall | Â | X | Â | X | Â | Â |