Phase/data type | Data element |
---|---|
General: demographics | Gender |
Race/ethnicity | |
Primary language | |
Insurance status | |
General: social characteristics | Smoking status |
History of alcohol use | |
History of other substance abuse | |
History of homelessness/being marginally housed | |
Comorbidities | |
History of HIV/AIDS | |
General: utilization | Otolaryngology-Head and Neck Surgery visit dates and status (attended/canceled/no-show/scheduled) |
Medical oncology visit dates and status (attended/canceled/no-show/scheduled) | |
Radiation oncology visit dates and status (attended/canceled/no-show/scheduled) | |
Patient only seen for hospitalization | |
Most recent visit date | |
General: outcomes | Overall follow-up time |
Survival | |
General: results | Imaging for cancer monitoring |
All imaging | |
Thyroid-stimulating hormone test dates and results | |
All lab test dates and results | |
Pathology dates and results | |
1. Workup and treatment planning | Date of diagnosis |
Date of referral to tumor board | |
Date of presentation at tumor board | |
Date imaging appointments sent, scheduled, and completed | |
Date referrals sent, scheduled, and completed | |
TNM staging | |
Site | |
Histology | |
P16 test results* | |
Treatment plan | |
Dates of patient outreach† | |
Date of recurrence | |
2. In treatment | Date of dental evaluation |
Date of treatment start | |
Date of treatment completion | |
Recommended and received dose and treatment sessions | |
Treatment result (e.g., completed, not completed, delays) | |
Dates of treatment delays/complications | |
Type of treatment delays/complications | |
Dates post-treatment imaging ordered and completed | |
Dates of patient outreach† |