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Table 2 Core set of instruments used

From: Application of Marte Meo® counselling with people with behavioural variant frontotemporal dementia and their primary carers (AMEO-FTD) – a non-randomized mixed-method feasibility study

Outcome/domain

Instrument

Data source

t0

t1

t2a

Pilot effect study (with an embedded qualitative change evaluation)b

bvFTD

  ▪ Relationship ability

MM instrument [36]

Evaluations of videos of dyadic interactions by researchers

  ▪ Affect

QUALIDEM positive and negative affect subscales [37]

Proxy rating by primary carer

  ▪ Behavioural and psychological symptoms in dementia (BPSD)

NPI [38]

Proxy rating by primary carer

Primary carer

  ▪ Sensitivity

SI [39]

Assessment of videos of dyadic interactions by researchers

  ▪ Stress experience due to BPSD

NPI-D [38]

Self-rating

  ▪ Manageability of BPSD

NPI-M [40]

Self-rating

  ▪ Goal attainment by intervention

GAS [41]

Self-rating

 

Dyad

  ▪ Quality of relationship

QCPR scale [42, 43]

Assessment by primary carer

  ▪ Social Interactionb

Videography of dyadic interaction in everyday life [44]

Videos, video transcripts and context information of researchers

Pilot process evaluation

Intervention process

  ▪ Benefits and perceptions of counselling

Quantitative interviews with 35 standardized single items

Primary carer

  

  ▪ Benefits and perceptions of counselling

Quantitative feedback questionnaire with standardized 11 single items

Primary carer

  ▪ Promoting and inhibiting factors, appropriateness for the target group, doses and frequency, quality of counselling, etc.

Guided telephone interviews

Marte Meo® Therapist

  

Study process

  ▪ Recruitment rate

Recruitment documentation

Researcher

  ▪ Recruitment, data collection, confirmation of bvFTD diagnosis

Field notes, documentation and memory protocols, reflections and observations on site

Researcher

  1. aIf there were data collection activities between t0, t1 and t2, the time points are interconnected with a solid line
  2. bMethodological details and the results of the embedded qualitative evaluation will be reported elsewhere
  3. bvFTD behavioural variant frontotemporal dementia, MM Marte Meo®, NPI Neuropsychiatric Inventory, QUALIDEM proper name, SI Sensitivity index, NPI-D NPI Caregiver Distress Scale, NPI-M NPI Caregiver Manageability Scale, GAS Goal Attainment Scale, QCPR Quality of Carer-Patient Relationship (QCPR) scale