Table 1 Overview of both trainings
From: A feasibility study on two tailored interventions to improve adherence in adults with haemophilia
| Â | Session/module | Aim of the session |
|---|---|---|
‘Living with haemophilia’ (face-to-face) | 1.Control | Creating realization in how a patient is controlling thoughts, feelings and physical sensations. Discussing if this way of handling thoughts, feelings and physical sensations is effective or not. |
2. Acceptance | Creating space for tiresome thoughts, feelings and physical sensations. Acceptance is part of tolerating challenging experiences patients cannot get rid of. | |
3. Letting go of thoughts | Creating realization about thoughts and how thoughts arise. Discuss if thoughts always are effective and if not how to transform them by changing them. | |
4. Self | Distancing ourselves from strict or rigid beliefs. Discuss who someone is and someone’s identity. Discussing if this vision about yourself is real or if they are just thoughts, feelings and physical sensations. Discuss who someone wants to be. | |
5. Values | Creating realization in what a patient must do, can do and wants to do. Discussing which values are important for the patient and what he really wants in life. | |
6. Handling | Discussing barriers, motivators and strategies for things patients really want to do. Creating realization of someone’s short and long time reward. Developing concrete plans. | |
7 Looking back and forward | Summarizing on the six concepts (control, acceptance, letting go thoughts, self, values and handling) and discussing used metaphors and exercises. | |
8. Follow-up session | Discussing progress and providing additional advice. | |
‘Challenging your haemophilia’ (online) | 1. Willing | Which values are important, learning about self-management and setting personal goals |
2. Knowledge | What is haemophilia, advantage and disadvantages of haemophilia and how to intergrade prophylaxis regimen into daily life | |
3. Being able | Infusing tips, taking and holding your own control, making responsible choices, tackling problems, communication and giving and receiving feedback | |
4. Living together | Communication about haemophilia with others, haemophilia and its impact on relationships and sexuality and impact of haemophilia on children | |
5. Exercise and sport | Differences in goals and levels of exercising, making consensus choices about exercising, current exercise habits, impact of exercise on daily life and importance of taking a day off | |
6. Work | The combination of work and haemophilia, potential obstacles and how to tackle them | |
7. Looking ahead | Evaluating and setting personal goals |