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Table 4 Information on health status at baseline from different sources

From: Development and proof-of-concept of a multicenter, patient-centered cancer registry for breast cancer patients with metastatic disease—the “Breast cancer care for patients with metastatic disease” (BRE-4-MED) registry

Health status 
Reported by physician: Charlson Comorbidity Index, n (%)
 628 (87.5)
 72 (6.3)
 131 (3.1)
Reported by Cancer Registry: Karnofsky Index, n (%)
 90–100%7 (22.6)
 70–80%3 (9.7)
No information on Karnofsky Index in Cancer Registries available7 (22.6)
missing14 (45.2)
45.2)Self-rated quality of life (EORTC-QL-2 (Version 3)) by n = 30 patients (pCRF): 7-point Likert Scale, mean (std)4.9 (± 1.2)
Self-rated quality of life (EORTC-QL-2 (Version 3)) by n = 7 patients (APP, eCRF): 7-point Likert Scale, mean (std)5.9 (± 0.9)
Consistency of self-reported quality of life between pCRF and APP at baseline (n = 7), Pearson correlation coefficient0.90
Self-rated health status (EORTC-QL-2 (Version 3)) by n = 30 patients (pCRF): 7-point Likert Scale, mean (std)4.8 (± 1.2)
Self-rated health status (EORTC-QL-2 (Version 3)) by n = 7 patients (APP, eCRF): 7-point Likert Scale, mean (std)5.6 (± 1.3)
Consistency of self-reported health status between pCRF and APP at baseline, Pearson correlation coefficient0.96