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Table 4 Information on health status at baseline from different sources

From: Development and proof-of-concept of a multicenter, patient-centered cancer registry for breast cancer patients with metastatic disease—the “Breast cancer care for patients with metastatic disease” (BRE-4-MED) registry

Health status

 

Reported by physician: Charlson Comorbidity Index, n (%)

 6

28 (87.5)

 7

2 (6.3)

 13

1 (3.1)

Reported by Cancer Registry: Karnofsky Index, n (%)

 90–100%

7 (22.6)

 70–80%

3 (9.7)

No information on Karnofsky Index in Cancer Registries available

7 (22.6)

missing

14 (45.2)

45.2)Self-rated quality of life (EORTC-QL-2 (Version 3)) by n = 30 patients (pCRF): 7-point Likert Scale, mean (std)

4.9 (± 1.2)

Self-rated quality of life (EORTC-QL-2 (Version 3)) by n = 7 patients (APP, eCRF): 7-point Likert Scale, mean (std)

5.9 (± 0.9)

Consistency of self-reported quality of life between pCRF and APP at baseline (n = 7), Pearson correlation coefficient

0.90

Self-rated health status (EORTC-QL-2 (Version 3)) by n = 30 patients (pCRF): 7-point Likert Scale, mean (std)

4.8 (± 1.2)

Self-rated health status (EORTC-QL-2 (Version 3)) by n = 7 patients (APP, eCRF): 7-point Likert Scale, mean (std)

5.6 (± 1.3)

Consistency of self-reported health status between pCRF and APP at baseline, Pearson correlation coefficient

0.96