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Table 2 ASCQ-Me (t scores*) and J-SAT results

From: A pilot test of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) and the Jenerette Self-Care Assessment (J-SAT) Tools in adults with sickle cell disease

  Minimum Maximum Mean SD SE
ASCQ-Me SCD-MHC** n (%) 4.0 7.0 5.6 1.1 -
 Low disease severity 3 (15)
 Medium disease severity 3 (15)
 High disease severity 14 (70)
ASCQ-Me quality of life
 Emotional impact 37.9 65.5 53.7 8.7 1.9
 Pain impact 38.1 63.8 50.6 7.7 1.7
 Social functioning impact 43.5 69.8 53.7 9.6 2.1
 Stiffness impact 35.5 65.4 52.4 8.5 1.9
 Sleep impact 35.0 61.1 50.2 8.4 1.9
 Pain frequency 25.0 56.3 43.6 9.9 2.2
 Pain severity 21.8 59.3 42.5 10.1 2.3
J-SAT 27.0 32.0 30.2 1.8 0.4
  1. SD = standard deviation; SE = standard error
  2. *The Adult Sickle Cell Quality of Life Measurement Information System uses a t-score metric, calibrated with a referent population. Fifty is the mean, and 10 is the standard deviation of the reference population. A mean of 50 indicates average health status on the subscale
  3. **Scores on the SCD Medical History Checklist range 0–9 and are obtained by summing the number of endorsed responses. Low (< 2), medium (= 2), and high (> 2) disease severity are cut-offs and are based on specifications by Keller, Yang, Tredwell, and Hassell 2017