A pilot test of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) and the Jenerette Self-Care Assessment (J-SAT) Tools in adults with sickle cell disease

Table 2 ASCQ-Me (t scores*) and J-SAT results

		Minimum	Maximum	Mean	SD	SE
ASCQ-Me SCD-MHC**	n (%)	4.0	7.0	5.6	1.1	-
Low disease severity	3 (15)
Medium disease severity	3 (15)
High disease severity	14 (70)
ASCQ-Me quality of life
Emotional impact		37.9	65.5	53.7	8.7	1.9
Pain impact		38.1	63.8	50.6	7.7	1.7
Social functioning impact		43.5	69.8	53.7	9.6	2.1
Stiffness impact		35.5	65.4	52.4	8.5	1.9
Sleep impact		35.0	61.1	50.2	8.4	1.9
Pain frequency		25.0	56.3	43.6	9.9	2.2
Pain severity		21.8	59.3	42.5	10.1	2.3
J-SAT		27.0	32.0	30.2	1.8	0.4

SD = standard deviation; SE = standard error
*The Adult Sickle Cell Quality of Life Measurement Information System uses a t-score metric, calibrated with a referent population. Fifty is the mean, and 10 is the standard deviation of the reference population. A mean of 50 indicates average health status on the subscale
**Scores on the SCD Medical History Checklist range 0–9 and are obtained by summing the number of endorsed responses. Low (< 2), medium (= 2), and high (> 2) disease severity are cut-offs and are based on specifications by Keller, Yang, Tredwell, and Hassell 2017

ISSN: 2055-5784