TY - JOUR AU - Hassell, K. L. PY - 2010 DA - 2010// TI - Population estimates of sickle cell disease in the U.S JO - Am J Prev Med VL - 38 UR - https://doi.org/10.1016/j.amepre.2009.12.022 DO - 10.1016/j.amepre.2009.12.022 ID - Hassell2010 ER - TY - JOUR AU - Yawn, B. P. PY - 2014 DA - 2014// TI - Management of sickle cell disease: summary of the 2014 evidence-based report by expert panel members JO - Jama VL - 312 UR - https://doi.org/10.1001/jama.2014.10517 DO - 10.1001/jama.2014.10517 ID - Yawn2014 ER - TY - JOUR AU - Lanzkron, S. AU - Carroll, C. P. AU - Haywood, C. PY - 2013 DA - 2013// TI - Mortality rates and age at death from sickle cell disease: U.S., 1979-2005 JO - Public Health Rep VL - 128 UR - https://doi.org/10.1177/003335491312800206 DO - 10.1177/003335491312800206 ID - Lanzkron2013 ER - TY - JOUR AU - Adeyemo, T. A. PY - 2015 DA - 2015// TI - Health related quality of life and perception of stigmatisation in adolescents living with sickle cell disease in Nigeria: a cross sectional study JO - Pediatr Blood Cancer VL - 62 UR - https://doi.org/10.1002/pbc.25503 DO - 10.1002/pbc.25503 ID - Adeyemo2015 ER - TY - JOUR AU - Dampier, C. PY - 2011 DA - 2011// TI - Health-related quality of life in adults with sickle cell disease (SCD): a report from the comprehensive sickle cell centers clinical trial consortium JO - Am J Hematol VL - 86 UR - https://doi.org/10.1002/ajh.21905 DO - 10.1002/ajh.21905 ID - Dampier2011 ER - TY - JOUR AU - Mann-Jiles, V. AU - Morris, D. L. PY - 2009 DA - 2009// TI - Quality of life of adult patients with sickle cell disease JO - J Am Acad Nurse Pract VL - 21 UR - https://doi.org/10.1111/j.1745-7599.2009.00416.x DO - 10.1111/j.1745-7599.2009.00416.x ID - Mann-Jiles2009 ER - TY - JOUR AU - McClish, D. K. PY - 2005 DA - 2005// TI - Health related quality of life in sickle cell patients: the PiSCES project JO - Health Qual Life Outcomes VL - 3 UR - https://doi.org/10.1186/1477-7525-3-50 DO - 10.1186/1477-7525-3-50 ID - McClish2005 ER - TY - JOUR AU - Jenerette, C. M. AU - Murdaugh, C. PY - 2008 DA - 2008// TI - Testing the theory of self-care management for sickle cell disease JO - Res Nurs Health VL - 31 UR - https://doi.org/10.1002/nur.20261 DO - 10.1002/nur.20261 ID - Jenerette2008 ER - TY - JOUR AU - Tanabe, P. PY - 2010 DA - 2010// TI - A qualitative analysis of best self-management practices: sickle cell disease JO - J Natl Med Assoc VL - 102 UR - https://doi.org/10.1016/S0027-9684(15)30730-6 DO - 10.1016/S0027-9684(15)30730-6 ID - Tanabe2010 ER - TY - JOUR AU - Matthie, N. AU - Jenerette, C. AU - McMillan, S. PY - 2015 DA - 2015// TI - Role of self-care in sickle cell disease JO - Pain Manag Nurs VL - 16 UR - https://doi.org/10.1016/j.pmn.2014.07.003 DO - 10.1016/j.pmn.2014.07.003 ID - Matthie2015 ER - TY - JOUR AU - Keller, S. PY - 2017 DA - 2017// TI - Sensitivity of alternative measures of functioning and wellbeing for adults with sickle cell disease: comparison of PROMIS(R) to ASCQ-Me JO - Health Qual Life Outcomes VL - 15 UR - https://doi.org/10.1186/s12955-017-0661-5 DO - 10.1186/s12955-017-0661-5 ID - Keller2017 ER - TY - JOUR AU - Keller, S. D. PY - 2014 DA - 2014// TI - Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banks JO - Health Qual Life Outcomes VL - 12 UR - https://doi.org/10.1186/s12955-014-0125-0 DO - 10.1186/s12955-014-0125-0 ID - Keller2014 ER - TY - JOUR AU - Treadwell, M. J. PY - 2014 DA - 2014// TI - Adult sickle cell quality-of-life measurement information system (ASCQ-Me): conceptual model based on review of the literature and formative research JO - Clin J Pain VL - 30 UR - https://doi.org/10.1097/AJP.0000000000000054 DO - 10.1097/AJP.0000000000000054 ID - Treadwell2014 ER - TY - STD TI - Keller S, et al. ASCQ-ME User’s Manual: American Institutes for Research; 2017. ID - ref14 ER - TY - JOUR AU - Mastandrea, E. B. PY - 2015 DA - 2015// TI - The relationship between genotype, psychiatric symptoms and quality of life in adult patients with sickle cell disease in Sao Paulo, Brazil: a cross-sectional study JO - Sao Paulo Med J VL - 133 UR - https://doi.org/10.1590/1516-3180.2015.00171105 DO - 10.1590/1516-3180.2015.00171105 ID - Mastandrea2015 ER -