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Table 1 Content of the CARE-CITE Intervention for the carepartner

From: A web-based carepartner-integrated rehabilitation program for persons with stroke: study protocol for a pilot randomized controlled trial

Modules

Content

Overview of Modules Structure

Each module has the purpose, information in text format and video clips to provide additional detail and/or illustrate examples of behavior discussed. At the end of each module are 4–5 reflection questions to allow for application of content and 7 questions to obtain feedback on ease of use, acceptability and usefulness of modules.

Module I: Welcome to CARE-CITE

Description of the CARE-CITE project, overall summary of the modules and intent. Welcome survey for CP to fill out with the research interventionist to practice using website and completing questionnaires. One video clip with introductory information.

Module II: Introduction to Concepts and Applications of CIMT

Overview of CIMT, including behavior contract (CP and individual with stroke determine activities when mitt worn and taken off) and home diary (to record activities/time wearing mitt).

Four video clips with information about wearing the mitt, behavior contract, home diary, and committing to practice.

Module III: Practice and Goal Setting

Review of role of practice in driving neuroplasticity and recovery after stroke. Discussion of challenge threshold, making mistakes while learning new skills. Guidance provided for problem solving to adapt functional activities at home, both reducing complexity when a task was too difficult and increasing challenge when the task was easily mastered. Two to three brief video clips for each of six themes of practice.

Module IV: Autonomy Support – Creating Partnerships

Creating an Autonomy-Supportive Environment – How to be empathic, problem solve in performing tasks in the home setting, use non-controlling language and offer choice. Examples include suggesting CP wear mitt on non-dominant hand while trying tasks and offering alternative activities when individual with stroke becomes frustrated during a challenging task. Recognizing challenges and exploring ways to improve communication (avoid controlling language such as “you should exercise”, “you have to do this”). Seven video clips illustrating understanding another’s viewpoint, problem-solving strategies, providing rationale and providing choice.

Module V: Taking Care of Yourself as a Carepartner

CP self-care – recognizing demands of caregiving role, strategies for stress reduction, opportunities for self-care activities and community resources. (no videos)

Module VI: Reflections

Three videos (limited text) of stroke survivors reflecting on rehabilitation and recovery. Encouraging CP reflection on his/her role in recovery of the individual with stroke.

  1. Table reprinted by permission of the publisher (Taylor & Fancis Ltd., http://www.tandfonline.com) from [13]