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Table 4 Thematic analysis of end-of-study provider interviews (n = 9)

From: Ambulatory Toxicity Management (AToM) Pilot: results of a pilot study of a pro-active, telephone-based intervention to improve toxicity management during chemotherapy for breast cancer

Main themes

Sub-categories

Specific comments

 What worked well

a) Patients liked receiving calls

• Overall the intervention was well received by patients who appreciated the personal touch the intervention added to their care.

• Reassurance provided to patients regarding their treatment experience reduced anxiety.

• Patients liked consistent individual performing the calls.

b) Providers liked delivering the intervention

• Providers enjoyed their involvement.

• Orientation provided to staff prior to their involvement

c) Importance of planning

• Screening breast clinic patient lists to identify patients eligible for the study.

• Determining a scheduled time to make the intervention calls to prevent missed calls.

• The use of a thorough and practical tool to provide structure to the telephone calls.

 What did not work

a) Fitting the intervention into existing work flow

• Providers struggled to fill calls into their existing work schedule.

• Burden of large amounts of data collection and length of form to be completed during calls.

• Communication between team members and incorporation of NCI PRO-CTCAE into clinic appointments.

• Inconsistent staff performing intervention calls.

• Patients’ confusion regarding who to call if issues arose between calls.

b) Ensuring appropriate experience

• Clinical trial staff may not have sufficient symptom management experience compared with nurses working in the chemotherapy clinic.

 Recommendations for improvement

a) Calls

• Develop a tracking tool for the telephone calls.

• Timing of calls: first call for cycle one should be early. After first cycle, one call at days 5–8 may be sufficient.

• Limit number of providers making follow-up calls.

• Track and manage other common symptoms during calls (e.g., insomnia, anxiety, and depression).

b) Staff training

• Further training on symptom management and organization of workload.

c) Communication within circle of care

• Develop process to ensure oncologists and staff are aware of symptom information reported on NCI PRO-CTCAE.

• Develop documentation process to ensure clear communication between team members.

d) Other

• Reduce amount of data collection.

• Improve patient symptom management guide—make it more illustrative.