Table 2 End-of-study feedback from participants by study site
Questions | Participant response | Centre 1 | Centre 2 | Total | |||
|---|---|---|---|---|---|---|---|
N = 49 (%) | 95% CI | N = 21 (%) | 95% CI | N = 70 (%) | 95% CI | ||
NCI PRO-CTCAE tool | |||||||
 The NCI PRO is important because it helps my healthcare team and research coordinator know what symptom I am having and how severe they are. | Strongly agree/somewhat agree | 49 (100) | 92.8–100 | 20 (95.2) | 76.2–99.9 | 69 (98.6) | 92.3–100 |
 The symptom levels made it easier for me to describe how I am physically feeling. | Strongly agree/somewhat agree | 47 (95.9) | 86.0–99.5 | 20 (95.2) | 76.2–99.9 | 67 (95.7) | 88.0–99.1 |
Symptom management guide | |||||||
 During your chemotherapy treatment, did you use the symptom management guide provided to you? | Yes | 45 (91.8) | 80.4–97.7 | 15 (71.4) | 47.8–88.7 | 60 (85.7) | 75.3–92.9 |
 How often did you refer to the symptom management Guide? (number of times/chemotherapy cycle) | Never | 4 (8.2) | 2.3–19.6 | 6 (28.6) | 11.3–52.2 | 10 (14.3) | 7.1–24.7 |
1–3 | 28 (57.1) | 42.2–71.1 | 13 (61.9) | 38.4–81.9 | 41 (58.6) | 46.2–70.2 | |
Greater than 3 times | 12 (24.5) | 13.3–38.9 | 2 (9.5) | 1.2–30.4 | 14 (20.0) | 11.4–31.3 | |
Missing | 5 (10.2) | 3.4–22.2 | 0 | 0–16.1 | 5 (7.1) | 2.4–15.9 | |
 Did you find the symptom management guide helpful in managing your symptoms related to chemotherapy? | Strongly agree/somewhat agree | 44 (89.7) | 77.8–96.6 | 14 (66.7) | 43.0–85.4 | 58 (82.9) | 72.0–90.8 |
 Did you feel that the symptom management guide improved your ability to self-manage your chemotherapy side effects? | Strongly agree/somewhat agree | 44 (89.7) | 77.8–96.6 | 15 (71.4) | 47.8–88.7 | 59 (84.3) | 73.6–91.9 |
 Did you feel that the symptom management guide helped you to understand when to seek medical care? | Strongly agree/somewhat agree | 46 (93.9) | 83.1–98.7 | 15 (71.4) | 47.8–88.7 | 61 (87.1) | 77.0–94.0 |
Pro-active, telephone-based symptom management calls | |||||||
 Did you like receiving the follow-up phone calls? | Strongly agree/somewhat agree | 49 (100) | 92.8–100 | 19 (90.5) | 69.6–98.8 | 68 (97.1) | 90.1–99.7 |
 Did you find the follow-up phone calls to be a burden? | Strongly agree/somewhat agree | 2 (4.1) | 0.5–14.0 | 2 (9.5) | 1.2–30.4 | 4 (5.7) | 1.6–14.0 |
 Were the follow-up calls helpful in managing your symptoms? | Strongly agree/somewhat agree | 47 (95.9) | 86.1–99.5 | 17 (81.0) | 58.1–94.6 | 64 (91.4) | 82.3–96.8 |
Overall | |||||||
 During treatment, my physical symptoms have been controlled to a comfortable level (examples of physical symptoms are nausea, pain, constipation, etc.) | Strongly agree/somewhat agree | 48 (98.0) | 89.2–100 | 20 (95.2) | 76.2–99.9 | 68 (97.1) | 90.1–99.7 |
 During treatment, my emotional symptoms have been controlled to a comfortable level (examples of emotional symptoms are anxiety, depression, etc.) | Strongly agree/somewhat agree | 48 (98.0) | 89.2–100 | 16 (76.2) | 52.8–91.8 | 64 (91.4) | 82.3–96.8 |
 Do you feel that participating in this study prevented you from going to the emergency room as a result of you chemotherapy side effects? | Strongly agree/somewhat agree | 35 (71.4) | 56.7–83.4 | 12 (57.1) | 34.0–78.2 | 47 (67.1) | 54.9–77.9 |
Strongly disagree/somewhat disagree | 8 (16.3) | 7.3–29.7 | 5 (23.8) | 8.2–47.2 | 13 (18.6) | 10.3–29.7 | |
 Would you recommend this study protocol (symptom assessment, symptom management, and follow-up phone calls) be adapted to all cancer patients getting chemotherapy? | Strongly agree/somewhat agree | 47 (95.9) | 86.1–99.5 | 19 (90.5) | 69.6–98.8 | 66 (94.3) | 86.0–98.4 |