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Table 1 Long-list of PMR PROM questionnaire items derived from the qualitative study

From: Assessment of the face validity, feasibility and utility of a patient-completed questionnaire for polymyalgia rheumatica: a postal survey using the QQ-10 questionnaire

Item

Question

1

How severe has the pain from your PMR been in the last 2 weeks? (0-10 visual analogue scale (VAS) with 0 = no pain and 10 = the worst pain you’ve ever had)

2

How severe has the stiffness from your PMR been in the last 2 weeks? (0-10 VAS with 0 = no stiffness and 10 = the worst stiffness you’ve ever felt)

3

How severe has the weakness from your PMR been in the last 2 weeks? (0-10 VAS with 0 = no weakness and 10 = complete weakness)

4

On average, for how much of each day has the pain/stiffness/weakness from your PMR been present for during the last 2 weeks?

All day/About half the day/Around 1-3 hours/< 1 hour

5

FUNCTION: Over the last 2 weeks, compared to what you can normally do, has PMR limited your ability to do the following activities?

Graded as 1) no, not limited at all, 2) yes, limited a little, 3) yes, limited a lot, 4) not relevant

Bend down

Get up after bending down

Get in and out of a car

Drive a car

Get in and out of bed

Get in or out of a chair

Get in or out of a bath

Wash yourself fully

Dry yourself fully after a shower/bath

Take your coat on or off

Put on or take off your socks and shoes

Comb or blow dry your hair

Get on or off the toilet

Wipe yourself after going to the toilet

Engage in intimate/sexual activity

Walk up stairs

Walk up hills

Walk on the flat

Carry or lift things

Reach above your head for things

Grip objects

Do housework

Do gardening

Sit for more than 30 minutes at a time

Participate in sports

6

EMOTIONAL AND PSYCHOLOGICAL WELL-BEING: In the last 2 weeks have your PMR symptoms…

Graded as 1) none of the time, 2) a little of the time, 3) some of the time, 4) most of the time, 5) all of the time

Caused you to feel low in mood

Caused you to feel anxious

Caused you to feel vulnerable

Lowered your self-confidence

Made you worried that you might fall over

Caused you to need more help with looking after yourself

Made you less inclined to go out

Stopped you doing hobbies that you used to do

Made you worry about the future

Affected your sleep

Made you feel more tired than usual

7

TREATMENT SIDE EFFECTS: How much have you been affected by side effects from your medication in the last 2 weeks? (VAS with 0 = unaffected, 10 = severely affected)

8

In the last 2 weeks, have you been bothered by any of the following side effects of your steroid medication? (Yes/No)

Weight gain

Change in appearance (fatter face, saggy skin)

Irritability

Low mood

Euphoria

Hyperactivity

Easy bruising

Indigestion

Insomnia

Hair loss

9

Do you feel back to the level of health you were at before you first experienced PMR symptoms? (Yes/No)