TY - STD TI - Australian Institute of Health and Welfare (Aihw) and Australasian Association of Cancer Registries (Aacr), Cancer in Australia 2001, in AIHW cat. no. CAN 23. 2004, AIHW (Cancer Series no. 28): Canberra. ID - ref1 ER - TY - JOUR AU - Sonmezer, M. AU - Oktay, K. PY - 2004 DA - 2004// TI - Fertility preservation in female patients JO - Hum Reprod Update VL - 10 UR - https://doi.org/10.1093/humupd/dmh021 DO - 10.1093/humupd/dmh021 ID - Sonmezer2004 ER - TY - JOUR AU - Minton, S. AU - Munster, N. PY - 2002 DA - 2002// TI - Chemotherapy-induced amenorrhea and fertility in women undergoing adjuvant treatment for breast cancer JO - Cancer Control VL - 9 ID - Minton2002 ER - TY - JOUR AU - Hammarberg, K. AU - Clarke, V. E. PY - 2005 DA - 2005// TI - Reasons for delaying childbearing—a survey of women aged over 35 years seeking assisted reproductive technology JO - Aust Fam Physician VL - 34 ID - Hammarberg2005 ER - TY - JOUR AU - Peate, M. AU - Meiser, B. AU - Friedlander, M. AU - Zorbas, H. AU - Rovelli, S. AU - Sansom-Daly, U. PY - 2011 DA - 2011// TI - It’s now or never: fertility-related knowledge, decision-making preferences, and treatment intentions in young women with breast cancer—an Australian fertility decision aid collaborative group study JO - J Clin Oncol VL - 29 UR - https://doi.org/10.1200/JCO.2010.31.2462 DO - 10.1200/JCO.2010.31.2462 ID - Peate2011 ER - TY - JOUR AU - Duffy, C. AU - Allen, M. AU - Clark, M. PY - 2005 DA - 2005// TI - Discussions regarding reproductive health for young women with breast cancer undergoing chemotherapy JO - J Clin Oncol VL - 20 UR - https://doi.org/10.1200/JCO.2005.01.134 DO - 10.1200/JCO.2005.01.134 ID - Duffy2005 ER - TY - BOOK PY - 2004 DA - 2004// TI - Breast cancer research in Australia: meeting the challenges PB - National Breast Cancer Foundation CY - Sydney ID - ref7 ER - TY - JOUR AU - Peate, M. AU - Meiser, B. AU - Hickey, M. AU - Friedlander, M. PY - 2009 DA - 2009// TI - The fertility-related concerns, needs and preferences of younger women with breast cancer: a systematic review JO - Breast Cancer Res Treat VL - 116 UR - https://doi.org/10.1007/s10549-009-0401-6 DO - 10.1007/s10549-009-0401-6 ID - Peate2009 ER - TY - JOUR AU - Fallowfield, L. J. AU - Hall, A. AU - Maguire, P. AU - Baum, M. AU - A’hern, R. P. PY - 1994 DA - 1994// TI - Psychological effects of being offered choice of surgery for breast cancer JO - Br Med J VL - 309 UR - https://doi.org/10.1136/bmj.309.6952.448 DO - 10.1136/bmj.309.6952.448 ID - Fallowfield1994 ER - TY - JOUR AU - Weiss, S. M. AU - Wengert, P. A. AU - Martinez, E. M. AU - Sewall, W. AU - Kopp, E. PY - 1996 DA - 1996// TI - Patient satisfaction with decision-making for breast cancer therapy JO - Ann Surg Oncol VL - 3 UR - https://doi.org/10.1007/BF02306284 DO - 10.1007/BF02306284 ID - Weiss1996 ER - TY - BOOK PY - 2003 DA - 2003// TI - Clinical practice guidelines for the management and support of younger women with breast cancer PB - National Breast Cancer Centre CY - Sydney ID - ref11 ER - TY - JOUR AU - Peate, M. AU - Meiser, B. AU - Cheah, B. AU - Saunders, C. AU - Butow, P. AU - Thewes, B. PY - 2012 DA - 2012// TI - Making hard choices easier: a prospective, multicentre study to assess the efficacy of a fertility-related decision aid in young women with early-stage breast cancer JO - Br J Cancer VL - 106 UR - https://doi.org/10.1038/bjc.2012.61 DO - 10.1038/bjc.2012.61 ID - Peate2012 ER - TY - JOUR AU - Butow, P. AU - Brindle, E. AU - Mcconnell, D. AU - Boakes, R. AU - Tattersall, M. PY - 1998 DA - 1998// TI - Information booklets about cancer: factors influencing patient satisfaction and utilisation JO - Pat Educ Counsel VL - 33 UR - https://doi.org/10.1016/S0738-3991(97)00071-2 DO - 10.1016/S0738-3991(97)00071-2 ID - Butow1998 ER - TY - JOUR AU - Elwyn, G. AU - O’connor, A. AU - Stacey, D. AU - Volk, R. AU - Edwards, A. AU - Coulter, A. PY - 2006 DA - 2006// TI - Developing a quality criteria framework for patient decision aids: online international Delphi consensus process JO - BMJ VL - 333 UR - https://doi.org/10.1136/bmj.38926.629329.AE DO - 10.1136/bmj.38926.629329.AE ID - Elwyn2006 ER - TY - STD TI - Mccaffery KJ, Sheridan S, Nutbeam D, Clayman ML, Kelly-Blake K, Rovner D, et al., Addressing health literacy. In: Volk R & Llewellyn-Thomas H, Eds. Update of the International Patient Decision Aids Standards (IPDAS) Collaboration’s Background Document. 2012 ID - ref15 ER - TY - STD TI - Australian Bureau of Statistics. 4233.0 - Health Literacy, Australia, 2006 2008 24 July 2008 [cited 2014]. Available from: http://www.abs.gov.au/AUSSTATS/abs@.nsf/Latestproducts/4233.0Main%20Features22006. UR - http://www.abs.gov.au/AUSSTATS/abs@.nsf/Latestproducts/4233.0Main%20Features22006 ID - ref16 ER - TY - JOUR AU - Mccaffery, K. J. AU - Holmes-Rovner, M. AU - Smith, S. K. AU - Rovner, D. AU - Nutbeam, D. AU - Clayman, M. L. PY - 2013 DA - 2013// TI - Addressing health literacy in patient decision aids JO - BMC Med Inform Decis Mak VL - 13 UR - https://doi.org/10.1186/1472-6947-13-S2-S10 DO - 10.1186/1472-6947-13-S2-S10 ID - Mccaffery2013 ER - TY - JOUR AU - Mccray, A. T. PY - 2005 DA - 2005// TI - Promoting health literacy JO - J Am Med Inform Assoc VL - 12 UR - https://doi.org/10.1197/jamia.M1687 DO - 10.1197/jamia.M1687 ID - Mccray2005 ER - TY - STD TI - World Health Organization. Track 2: health literacy and health behaviour. 7th Global Conference on Health Promotion: track themes [cited 2014]. Available from: http://www.who.int/healthpromotion/conferences/7gchp/track2/en/. UR - http://www.who.int/healthpromotion/conferences/7gchp/track2/en/ ID - ref19 ER - TY - JOUR AU - Ishikawa, H. AU - Yano, E. AU - Fujimori, S. AU - Kinoshita, M. AU - Yamanouchi, T. AU - Yoshikawa, M. PY - 2009 DA - 2009// TI - Patient health literacy and patient–physician information exchange during a visit JO - Fam Pract VL - 26 UR - https://doi.org/10.1093/fampra/cmp060 DO - 10.1093/fampra/cmp060 ID - Ishikawa2009 ER - TY - JOUR AU - Nutbeam, D. PY - 2000 DA - 2000// TI - Health literacy as a public health goal: a challenge for contemporary health education and communication strategies into the 21st century JO - Health Promot Int VL - 15 UR - https://doi.org/10.1093/heapro/15.3.259 DO - 10.1093/heapro/15.3.259 ID - Nutbeam2000 ER - TY - JOUR AU - Berkman, N. AU - Sheridan, S. AU - Donahue, K. AU - Halpern, D. AU - Crotty, K. PY - 2011 DA - 2011// TI - Low health literacy and health outcomes: an updated systematic review JO - Ann Intern Med VL - 155 UR - https://doi.org/10.7326/0003-4819-155-2-201107190-00005 DO - 10.7326/0003-4819-155-2-201107190-00005 ID - Berkman2011 ER - TY - BOOK PY - 2014 DA - 2014// TI - Health literacy: taking action to improve safety and quality PB - ACSQHC CY - Sydney ID - ref23 ER - TY - JOUR AU - Kyunghye, K. AU - Lustria, M. L. A. AU - Burke, D. AU - Kwon, N. PY - 2007 DA - 2007// TI - Predictors of cancer information overload: findings from a national survey JO - Inf Res VL - 12 ID - Kyunghye2007 ER - TY - JOUR AU - Durand, M. -. A. AU - Carpenter, L. AU - Dolan, H. AU - Bravo, P. AU - Mann, M. AU - Bunn, F. PY - 2014 DA - 2014// TI - Do interventions designed to support shared decision-making reduce health inequalities? A systematic review and meta-analysis JO - PLoS ONE VL - 9 UR - https://doi.org/10.1371/journal.pone.0094670 DO - 10.1371/journal.pone.0094670 ID - Durand2014 ER - TY - STD TI - Borstkanker en kinderwens (“Breast cancer and have children”) website. Available from: http://www.borstkankerenkinderwens.nl. UR - http://www.borstkankerenkinderwens.nl/ ID - ref26 ER - TY - JOUR AU - Garvelink, M. AU - Kuile, M. AU - Fischer, M. AU - Louwé, L. AU - Hilders, C. AU - Kroep, J. PY - 2013 DA - 2013// TI - Development of a decision aid about fertility preservation for women with breast cancer in The Netherlands JO - J Psychosom Obstet Gynaecol VL - 34 UR - https://doi.org/10.3109/0167482X.2013.851663 DO - 10.3109/0167482X.2013.851663 ID - Garvelink2013 ER - TY - BOOK PY - 2007 DA - 2007// TI - Health literacy ID - ref28 ER - TY - JOUR AU - Sørensen, K. AU - Broucke, S. AU - Fullam, J. AU - Doyle, G. AU - Pelikan, J. AU - Slonska, Z. PY - 2012 DA - 2012// TI - Health literacy and public health: a systematic review and integration of definitions and models JO - BMC Public Health VL - 12 UR - https://doi.org/10.1186/1471-2458-12-80 DO - 10.1186/1471-2458-12-80 ID - Sørensen2012 ER - TY - JOUR AU - Lee, S. J. AU - Schover, L. R. AU - Partridge, A. H. AU - Patrizio, P. AU - Wallace, W. H. AU - Hagerty, K. PY - 2006 DA - 2006// TI - American Society of Clinical Oncology recommendations on fertility preservation in cancer patients JO - J Clin Oncol VL - 24 UR - https://doi.org/10.1200/JCO.2006.06.5888 DO - 10.1200/JCO.2006.06.5888 ID - Lee2006 ER - TY - JOUR AU - Loren, A. W. AU - Mangu, P. B. AU - Beck, L. N. AU - Brennan, L. AU - Magdalinski, A. J. AU - Partridge, A. H. PY - 2013 DA - 2013// TI - Fertility preservation for patients with cancer: American Society of Clinical Oncology Clinical Practice Guideline Update JO - J Clin Oncol VL - 31 UR - https://doi.org/10.1200/JCO.2013.49.2678 DO - 10.1200/JCO.2013.49.2678 ID - Loren2013 ER - TY - STD TI - Stacey D, Légaré F, Col NF, Bennett CL, Barry MJ, Eden KB, et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev. 2014. ID - ref32 ER - TY - JOUR AU - Houts, P. AU - Doak, C. AU - Doak, L. AU - Loscalzo, M. PY - 2006 DA - 2006// TI - The role of pictures in improving health communication: a review of research on attention, comprehension, recall, and adherence JO - Patient Educ Couns VL - 64 UR - https://doi.org/10.1016/j.pec.2006.06.023 DO - 10.1016/j.pec.2006.06.023 ID - Houts2006 ER - TY - JOUR AU - Peate, M. AU - Meiser, B. AU - Friedlander, M. AU - Saunders, C. AU - Martinello, R. AU - Wakefield, C. PY - 2011 DA - 2011// TI - Development and pilot testing of a fertility decision aid for young women diagnosed with early breast cancer JO - Breast J VL - 17 UR - https://doi.org/10.1111/j.1524-4741.2010.01033.x DO - 10.1111/j.1524-4741.2010.01033.x ID - Peate2011 ER - TY - BOOK AU - Peate, M. AU - Butow, P. AU - Fallon-Ferguson, J. AU - Friedlander, M. AU - Hart, R. AU - Hickey, M. PY - 2008 DA - 2008// TI - Fertility-related choices—a decision aid for younger women diagnosed with breast cancer PB - Prince of Wales Clinical School CY - Randwick ID - Peate2008 ER - TY - JOUR AU - Clerehan, R. AU - Buchbinder, R. AU - Moodie, J. PY - 2005 DA - 2005// TI - A linguistic framework for assessing the quality of written patient information: its use in assessing methotrexate information for rheumatoid arthritis JO - Health Educ Res VL - 20 UR - https://doi.org/10.1093/her/cyg123 DO - 10.1093/her/cyg123 ID - Clerehan2005 ER - TY - JOUR AU - Hibbard, J. AU - Peters, E. PY - 2003 DA - 2003// TI - Supporting informed consumer health care decisions: data presentation approaches that facilitate the use of information in choice JO - Annu Rev Public Health VL - 24 UR - https://doi.org/10.1146/annurev.publhealth.24.100901.141005 DO - 10.1146/annurev.publhealth.24.100901.141005 ID - Hibbard2003 ER - TY - BOOK AU - Doak, C. AU - Doak, L. AU - Root, J. PY - 1995 DA - 1995// TI - Teaching patients with low literacy skills PB - JB Lippincott Company CY - Philadelphia ID - Doak1995 ER - TY - BOOK AU - Isaac, S. AU - Michael, W. PY - 1995 DA - 1995// TI - Handbook in research and evaluation: a collection of principles, methods, and strategies useful in the planning, design, and evaluation of studies in education and the behavioral sciences PB - Educational and Industrial Testing Services CY - San Diego ID - Isaac1995 ER - TY - STD TI - Hill R. What sample size is “enough” in Internet survey research. Interpersonal Computing and Technology: An Electronic Journal for the 21st Century. 1998;6:3-4 ID - ref40 ER - TY - STD TI - Julious SA. Sample size of 12 per group rule of thumb for a pilot study. Pharmaceutical Stat. 2005;4:287-91. ID - ref41 ER - TY - BOOK AU - Belle, G. PY - 2008 DA - 2008// TI - Statistical rules of thumb. 2nd ed PB - John Wiley CY - New York UR - https://doi.org/10.1002/9780470377963 DO - 10.1002/9780470377963 ID - Belle2008 ER - TY - JOUR AU - Connelly, L. PY - 2008 DA - 2008// TI - Pilot studies JO - Medsurg Nurs VL - 17 ID - Connelly2008 ER - TY - BOOK AU - Treece, E. AU - Treece, J. PY - 1982 DA - 1982// TI - Elements of research in nursing PB - Mosby CY - St. Louis ID - Treece1982 ER - TY - JOUR AU - Rowlands, G. AU - Khazaezadeh, N. AU - Oteng-Ntim, E. AU - Seed, P. AU - Barr, S. AU - Weiss, B. D. PY - 2013 DA - 2013// TI - Development and validation of a measure of health literacy in the UK: the newest vital sign JO - BMC Public Health VL - 13 UR - https://doi.org/10.1186/1471-2458-13-116 DO - 10.1186/1471-2458-13-116 ID - Rowlands2013 ER -