Table 2 The responses from children and parents to survey’s questions
From: Assessing the feasibility of injectable growth-promoting therapy in Crohn’s disease
Total | ||||
|---|---|---|---|---|
Question | Response | Parents (n = 46) | Child (n = 48) | |
1 | How concerned are you about your child’s height? | Not concerned | 29 (63%) | 26 (54%) |
Slightly concerned | 11 (24%) | 19 (40%) | ||
Very concerned | 5 (11%) | 3 (6%) | ||
Missing | 1 (2%) | |||
2 | Do you think it is worth doctors trying to find a better treatment for growth in Crohn’s disease? | Yes | 40 (87%) | 42 (88%) |
No | 4 (9%) | 5 (10%) | ||
Missing | 2 (4%) | 1 (2%) | ||
3 | Do you think that the opportunity of gaining extra height is worth a year of daily injections? | Yes | 25 (54%) | 20 (41%) |
No | 19 (41%) | 28 (58%) | ||
Missing | 2 (4%) | 0 | ||
4 | We have explained that in an RCT you are not able to choose which treatment your child would receive. Would you be comfortable with this? | Yes | 20 (44%) | 24 (50%) |
No | 25 (54%) | 23 (47%) | ||
Missing | 1 (2%) | 1 (2%) | ||
5 | Would you and your child be willing to attend to have your child’s growth and other things checked (e.g. quality of life) if it sometimes means an extra visit (1 or 2 extra in a year)? | Yes | 34 (74%) | 36 (75%) |
No | 10 (22%) | 12 (25%) | ||
Missing | 2 (4%) | 0 | ||
6 | If the RCT we had in mind was happening now, would you be willing for your child to join? | Yes | 22 (48%) | 21 (44%) |
No | 23 (50%) | 27 (56%) | ||
Missing | 1 (2%) | 0 | ||