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Table 1 Standardized items in survivor self-assessment

From: A head and neck cancer intervention for use in survivorship clinics: a protocol for a feasibility study

Construct

Source

Symptom: memory, insomnia, fatigue, tiredness, or lack of energy, numbness or tingling in your hands or feet, shortness of breath, cough, ringing in your ears, dry mouth, voice changes, nosebleeds, mouth or throat sores, pain (general), difficulty swallowing, dizziness

Patient Reported Outcomes—Common Terminology Criteria for Adverse Events [53]

Symptom: difficulty hearing, neck or shoulder stiffness, neck pain, jaw pain, pain in your mouth, pain in your throat, frequency of pain (general), difficulty with opening your mouth, bad breath, bleeding from your mouth

Based on Patient Reported Outcomes—Common Terminology Criteria for Adverse Event

Symptom: sexual function

The European Organization for Research and Treatment of Cancer Quality of Life Questionnaire-C30—Head and Neck-35 [95]

Symptom: depression

Patient Health Questionnaire-2 [55]

Physical activity: frequency

Godin Leisure-Time Exercise Questionnaire [56]

Physical activity: average exercise time

Adaptation of the Godin Leisure-Time Exercise Questionnaire [56]

Smoking status: at least 100 cigarettes in entire life

National Health Interview Surveya

Smoking status to determine need for smoking cessation (ever smoked cigarettes, smoking in the past 30 days)

National Comprehensive Cancer Network Smoking Cessation Guidelinesb

Smoking status: years as a smoker cigarette exposure to determine eligibility for lung cancer screening (cigarettes per day, time since quitting)

Lung Cancer Screening Decision Toolc

Smoking history and current status to determine need for smoking cessation (ever smoked cigarettes, smoking in the past 30 days)

National Comprehensive Cancer Network Smoking Cessation Guidelinesb

Alcohol alcoholism use

The CAGE questionnaire [54]

  1. aNational Health Interview Survey, Questionnaires, Datasets, and Related Documentation 1997 to the present, centers for disease control and prevention
  2. bNCCN CLinical Practice Guidelines in Oncology, Smoking Cessation, Version 1.2015, 2015
  3. cLung Cancer Screening Decision Tool, mskcc.org Prediction Tools, Memorial Sloan Kettering Cancer Center, 2014